I have ALS
Incapacity and loss of independence – Quebec Government
Programs and services offered to individuals coping with a loss of independence caused primarily by ageing or an illness.
Info Social 811
For non-urgent psychosocial concerns, this free, confidential service will connect you with a psychosocial worker. Available 24/7 to anyone living in Quebec.
Info Santé 811
For non-urgent health issues, this free, confidential telephone consultation will connect you with a nurse. Available 24/7 to anyone living in Quebec.
I Don’t Know How to Die – Susan L. Paquin
A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.
Tales from the Bed: A Memoir – Jenifer Estess
In this memoir, a woman reflects on society’s definition of “having it all” after she is diagnosed with ALS in her 30s.
I Remember Running: The Year I Got Everything I Ever Wanted – and ALS – Darcy Wakefield
A woman’s story of change, loss and challenge in her first year living with ALS.
Rowing Without Oars – Ulla-Carin Lindquist
A woman diagnosed with ALS in the prime of her life chronicles her final years and reflects on how precious life is.
You’re Not You: A Novel – Michelle Wildgen
In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.