Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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ReferALS Early Referral Tool

The ReferALS Early Referral Tool is part of the ReferALS program, which both physicians and patients can use to help prepare them on the steps for referral to a Canadian ALS Research Network (CALS) Clinic.

Myra’s Kids Foundation

Our camp is a free, non-denominational bereavement camp for children and teenagers, ages 6 to 17, who are grieving a significant death.

*Event: Spotlight on ALS Research and Q&A – February 19, 2024

Top ALS researchers talked about their work and answered the questions of the ALS Community.

Medical Assistance in Dying (MAID) – Activity Book

A workbook to help children understand, prepare for, and experience Medical Assistance in Dying (MAID) in the way that’s best for them.

Webinar – Biomusic: An assistive technology for communicating through your body’s music

In this webinar, presented by Stefanie Blain-Moraes* on October 31, 2023, you will learn about biomusic – an innovative assistive technology that records emotion-related changes in physiological signals and converts them into musical output.

Grandpa, What is ALS? – ALS Society of Alberta

A children’s story about love, acceptance and understanding when a grandfather is diagnosed with ALS.

Talking about death won’t kill you: Conversations about medical assistance in dying and more

Anyone caring for someone with a serious illness will naturally think about how to support a “good death”. But what is a good death? Join host Donna Thomson for a conversation with Dr. Kathy Kortes-Miller, best-selling author and Canada’s favourite unconventional death educator.

Proper Seating in a Wheelchair: Adjustments and Utilization of Components – A video series by Lethbridge-Layton-Mackay Rehabilitation Centre (LLMRC)

This series of short videos provides guidance for proper wheelchair sitting and for making comfort and safety adjustments.

ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.