Newly diagnosed? Start here
Receiving an ALS diagnosis can be hard. There is so much information to take in, and it’s easy to get overwhelmed. We’re here to help you sort through it all.
Some people want to know as much as possible, often right after diagnosis. Others prefer to take a gradual approach as changes occur and as the need for specific information develops.
Your loved ones, whether family members or friends, may also wish to understand ALS so they can better support you and adapt to this new reality.
Take the approach that works best for you.
At ALS Quebec, we are here to support you from the very first moments.
You will find below resources to help you better understand the disease, explore the initial services available, and know where to turn for support.
Our Team
Our team is available to answer your questions, guide you, and offer support tailored to your needs. Don’t hesitate to reach out to us.
ALS clinics / treatment centres in Quebec
ALS‑specialized neurological clinics and treatment centers by region, including the neurologists and clinical nurses in each clinic.
ALS clinics are multidisciplinary centres aimed at delivering expert care to people and families living with ALS. Clinics provide education, monitoring and timely interventions, while promoting regular communication with your family doctor and community healthcare providers.
Checklist
Programs and Services
ALS Quebec programs and services. All services are free.
Learn more about our Support groups (for people living with ALS, caregivers, and bereaved individuals)
ALS 101 workshops: information on ALS, disease progression, and practical tools
Guide For People Living with ALS
The ALS Guide has been developed to provide practical information about ALS, its progression, and how people and families living with ALS can find solutions to help maintain independence.
This guide helps people living with ALS and their loved ones cope with the physical, emotional, and financial challenges of the disease. It complements the information provided by your healthcare team and offers practical advice on managing ALS, assistive equipment, legal and financial considerations, and more.
How to get involved in research
ALS research is seeing unprecedented progress. Often there are opportunities to be involved in testing new therapies or to contribute your biological information so researchers can learn more about the disease.