Newly diagnosed? Start here
Receiving an ALS diagnosis can be hard. There is so much information to take in, and it’s easy to get overwhelmed. We’re here to help you sort through it all.
Receiving a diagnosis of ALS can be overwhelming. You may experience many different emotions, and you may feel the need to learn more about how this complex disease will affect you. Some people want to know as much as possible, often right after diagnosis. Others prefer to take a gradual approach as changes occur and as the need for specific information develops. Take the approach that works best for you.
Family members and close friends may also wish to learn more about ALS.
Here are a few important resources to get you started:
ALS Guide
The ALS Guide has been developed to provide practical information about ALS, its progression, and how people and families living with ALS can find solutions to help maintain independence.
ALS clinics/treatment centres in Quebec
ALS clinics are multidisciplinary centres aimed at delivering expert care to people and families living with ALS. Clinics provide education, monitoring and timely interventions, while promoting regular communication with your family doctor and community healthcare providers.
How to get involved in research
ALS research is seeing unprecedented progress. Often there are opportunities to be involved in testing new therapies or to contribute your biological information so researchers can learn more about the disease.