Meet our team
Our caring staff members and leadership volunteers are dedicated to our mission and the ALS community.
General contact information
- Email: info@sla-quebec.ca
- Telephone: 514-725-2653
- Toll-free in Quebec: 1-877-725-7725
We’re here for you.
Please reach out to a member of our team with questions or comments. For medical support, please contact your family doctor, neurologist or local emergency department.
Philanthropic and fund development
Mylène Davignon
Philanthropic development Director, Major and planned gifts
t.
514 725-2653, ext. 115
Elsa Girard
Community engagement and volunteer coordinator
t.
514 725-2653, ext. 107
Communications
Emilie Orlhac
Communications Lead
**For any media inquiries, please contact media@sla-quebec.ca
t.
514 725-2653
Programs and Services
Veronique Pignatelli
Director of Programs and Support Services
t.
514 725-2653, ext. 104
Leigh Stephens
Educational Services and Resources Manager
t.
514 725-2653, ext. 102
Our volunteer Board members are leaders from the business and health community who provide governance oversight to our organization.
Many have a personal connection to ALS.
Executive Committee
Susan Kennerknecht
Chair
Former Caregiver
Benoit Guindon
Secretary
Lawyer, Kellner Avocats
Tanya Luttrell
Vice-Chair
Consultant, SISMIK Culture d’impact
Daniel Lussier
Treasurer
General Manager, Groupe Bellus Construction Inc.
André Besner
Vice-Chair
Quality and Continuous improvement, Trans Canada Forest Products
Administrators
Dr. Jean-Pierre Canuel
Retired Physician
Diagnosed with ALS in 2014
Isabel Cyr
Director, Government Relations & Public Affairs
Lithion Recycling Inc. Former caregiver
Vincent Gagné
Director, Government Relations
TELUS
Ann-Marie Léporé
Occupational therapist
Johanne Héroux
Public Relations and Communications consultant
Norman Maclsaac
Social Activist and Author
Diagnosed with ALS in 2014
Dr. Alec Cooper
Retired physician
Diagnosed with ALS in 2023
Dr. Richard Robitaille
Full Professor
Department of Neuroscience, Université de Montréal