General contact information



We’re here for you.

Please reach out to a member of our team with questions or comments. For medical support, please contact your family doctor, neurologist or local emergency department.


Claudine Cook

Executive Director


t. 514 725-2653, ext. 101

Karim Rabbouhi

Administrative and Volunteer Coordinator

t. 514 725-2653, ext. 105

Valérie La Salle

Executive Assitant

t. 514 725-2653, ext. 106

Fund Development

Joanie Gaudreault

Fundraising Events Manager

t. 514 725-2653, ext. 110

Hudnel Simélus

Communications and Events Agent – Intern

t. 514 725-2653, ext. 113

Théo Lambert

Communications and Events Agent – Intern

t. 514 725-2653, ext. 113

Spencer Strasser

Golf Event Coordinator – Intern

t. 514 725-2653, ext. 115

Communications

Emilie Orlhac

Communications Lead

t. 514 725-2653, ext. 108

Programs and Services

Veronique Pignatelli

Director of Programs and Support Services

t. 514 725-2653, ext. 104

Leigh Stephens

Educational Services and Resources Manager

t. 514 725-2653, ext. 102

Kate Busch

Programs and Services Coordinator


t. 514 725-2653, ext. 109

Claudia Diaz

Support Counsellor

t. 514 725-2653, ext. 111

Geneviève Gladu

Support Counsellor

t. 514 725-2653, ext. 112

Ady Proper

Support Counsellor

t. 514 725-2653, ext. 114

Yves Lafleur

Support Counsellor (part-time)

t. 514 725-2653, ext. 103



Our volunteer Board members are leaders from the business and health community who provide governance oversight to our organization.

Many have a personal connection to ALS.


Executive Committee

Susan Kennerknecht

Chair
President, Conseil BKK Consulting Inc.

Tanya Luttrell

Vice-Chair
Consultant at SISMIK Culture d’impact

Benoit Guindon

Secretary
Lawyer, Kellner Avocats

Daniel Lussier

Treasurer
General Manager, Groupe Bellus Construction Inc.

Administrators

André Besner

Vice President, Quality and Continuous improvement
Trans Canada Forest Products

Dr. Jean-Pierre Canuel

Retired Physician
Diagnosed with ALS in 2014

Isabel Cyr

Director, Government Relations & Public Affairs
Lithion Recycling Inc. Former caregiver

Vincent Gagné

Director, Government Relations

TELUS

Ann-Marie Léporé

Occupational therapist

Norman Maclsaac

Social Activist and Author
Diagnosed with ALS in 2014

Dr. Richard Robitaille

Full Professor
Department of Neuroscience, Université de Montréal