General contact information

We’re here for you.

Please reach out to a member of our team with questions or comments. For medical support, please contact your family doctor, neurologist or local emergency department.

Executive office

Claudine Cook

Executive Director

t. 514-725-2653, ext. 101

Karim Rabbouhi

Administrative and Volunteer Coordinator

t. 514-725-2653, ext. 105

Fund Development

Joanie Gaudreault

Fundraising Events and Community Engagement Coordinator

t. 514-725-2653, ext. 110

Laurence Courteau

Fundraising Development Officer, Major Gifts and Planned Giving

t. 514-725-2653, ext. 108 Maternity leave – please contact


t. 514-725-2653, ext. 110 – For all inquiries

Programs and Services

Veronique Pignatelli

Director of Programs and Support Services

t. 514-725-2653, ext. 104

Leigh Stephens

Educational Services and Resources Manager

t. 514-725-2653, ext. 102

Kate Busch

Programs and Services Coordinator

t. 514-725-2653, ext. 109

Claudia Diaz

Support Counsellor

t. 514-725-2653, ext. 111

Geneviève Gladu

Support Counsellor

t. 514-725-2653, ext. 112

Ady Proper

Support Counsellor

t. 514-725-2653, ext. 114

Yves Lafleur

Support Counsellor (part-time)

t. 514-725-2653, ext. 107

Our volunteer Board members are leaders from the business and health community who provide governance oversight to our organization.

Many have a personal connection to ALS.

Executive Committee

Susan Kennerknecht

President, Conseil BKK Consulting Inc.

André Falardeau

Former caregiver to a loved one with ALS

Benoit Guindon

Lawyer, Kellner Avocats

Tanya Luttrell

Consultant at SISMIK Culture d’impact


Dr. Jean-Pierre Canuel

Retired Physician
Diagnosed with ALS in 2014

Isabel Cyr

Director, Government Relations & Public Affairs
Lithion Recycling Inc. Former caregiver

Vincent Gagné

Director, Government Relations


Mario Goupil

Retired journalist
Real Estate agent (Estrie) Former caregiver to a loved one with ALS

Norman Maclsaac

Social Activist and Author
Diagnosed with ALS in 2014

Dr. Richard Robitaille

Full Professor
Department of Neuroscience, Université de Montréal

Diane Tkalec

Nurse Clinician
Former caregiver