General contact information



We’re here for you.

Please reach out to a member of our team with questions or comments. For medical support, please contact your family doctor, neurologist or local emergency department.


Claudine Cook

Executive Director


t. 514 725-2653, ext. 101

Valérie Mantes

Executive Assistant

t. 514 725-2653 #106

Karim Rabbouhi

Impact Manager and special projects

t. 514 725-2653, ext. 105

Philanthropic and fund development

Mylène Davignon

Philanthropic development Director, Major and planned gifts

t. 514 725-2653, ext. 115

Elsa Girard

Community engagement and volunteer coordinator

t. 514 725-2653, ext. 107

Joanie Gaudreault

Fundraising Events Manager

t. 514 725-2653, ext. 110

Communications

Emilie Orlhac

Communications Lead
**For any media inquiries, please contact media@sla-quebec.ca

t. 514 725-2653

Hudnel Simelus

Communications & Events Agent

t. 514 725-2653, ext. 108

Programs and Services

Veronique Pignatelli

Director of Programs and Support Services

t. 514 725-2653, ext. 104

Leigh Stephens

Educational Services and Resources Manager

t. 514 725-2653, ext. 102

Kate Busch

Programs and Services Coordinator


t. 514 725-2653, ext. 109

Claudia Diaz

Support Counsellor

t. 514 725-2653, ext. 111

Geneviève Gladu

Support Counsellor

t. 514 725-2653, ext. 112

Ady Proper

Support Counsellor

t. 514 725-2653, ext. 114



Our volunteer Board members are leaders from the business and health community who provide governance oversight to our organization.

Many have a personal connection to ALS.


Executive Committee

Susan Kennerknecht

Chair
Former Caregiver

Benoit Guindon

Secretary
Lawyer, Kellner Avocats

Tanya Luttrell

Vice-Chair
Consultant, SISMIK Culture d’impact

Daniel Lussier

Treasurer
General Manager, Groupe Bellus Construction Inc.

André Besner

Vice-Chair
Quality and Continuous improvement, Trans Canada Forest Products

Administrators

Dr. Jean-Pierre Canuel

Retired Physician
Diagnosed with ALS in 2014

Isabel Cyr

Director, Government Relations & Public Affairs
Lithion Recycling Inc. Former caregiver

Vincent Gagné

Director, Government Relations

TELUS

Ann-Marie Léporé

Occupational therapist

Johanne Héroux

Public Relations and Communications consultant

Norman Maclsaac

Social Activist and Author
Diagnosed with ALS in 2014

Dr. Alec Cooper

Retired physician
Diagnosed with ALS in 2023

Dr. Richard Robitaille

Full Professor
Department of Neuroscience, Université de Montréal