I have ALS
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
*Educational Webinar – ENG – Resilience and ALS with Rachel Thibeault
This webinar offers some basic psychological resilience strategies easily applicable in daily life.
Baluchon Long-term Respite Care
Baluchon’s mission is to offer respite over several days to caregivers who wish to keep their non-autonomous loved ones at home, while supporting and providing guidance to the caregiver before and after the in-home respite care process. It is the only non-profit organization offering long-term in-home respite care (4 to 14 days), 24 hours a […]
Act Respecting End-of-Life Care
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be introduced at disputed times. More specific information will be added as these provisions come into force.
*Bilingual Webinar : CAPTURE ALS
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
*Event : Spotlight on ALS Research and Q&A session – June 10 2024
On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]
*Educational Webinar – Consent to care
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.