I have ALS
Act Respecting End-of-Life Care
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be introduced at disputed times. More specific information will be added as these provisions come into force.
*Bilingual Webinar : CAPTURE ALS
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
*Event : Spotlight on ALS Research and Q&A session – June 10 2024
On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]
*Educational Webinar – Consent to care
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.
Canadian Neuromuscular Disease Registry (CNDR)
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.
Clinical Trials Quebec
Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is an innovative provincial tool that provides high quality, complete, neutral, and accessible information on clinical research, as well as free services that improve access to […]
CAPTURE ALS
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.
Pathways to Resilience
In a series of 6 webinars recorded at the beginning of the COVID-19 pandemic, occupational therapist and researcher Rachel Thibeault explores the concept of resilience.