I have ALS
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
Patients & families: 7 keys for navigating a life-changing diagnosis
Discover 7 essential steps to help patients and their families cope with a life-changing diagnosis. Practical advice to understand the illness, manage emotional impact, and organize daily support.
What to do when facing a serious illness: 3 sets of questions to ask your healthcare team
Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with your doctors and caregivers.
Amyotrophic Lateral Sclerosis (ALS) Symptom Roadmap: Understanding Your Symptoms and Illness Impacts
Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare for the future. An essential tool for people living with ALS and their caregivers.
*Educational Webinar – Voice cloning with Sophie Dupont and Dr. Alex Cooper
Voice cloning is the most recent technological advancement for creating a voice, using artificial intelligence (AI) to generate a synthetic copy of a human’s voice. Sophie Dupont will explain how voice cloning works as well as the more traditional voice banking. Dr. Alec Cooper will share his experience of voice cloning, as a means to […]
*Educational Webinar — on PLS (Primary Lateral Sclerosis) and PMA (Progressive Muscular Atrophy), with Dr. Nicolas Dupré
Dr. Dupré explains what PLS (primary lateral sclerosis) and PMA (progressive muscular atrophy) are and how they differ from ALS. ALS Quebec also supports people with these two rare neurodegenerative diseases. Join us to find out more. Thanks to our new Wordly software, our webinars are now translated live. We invite you to activate subtitles […]
*Event: Spotlight on ALS Research and Q&A – June 4, 2025
Dr. Richard Robitaille, professor in the Department of Neuroscience at the Université de Montréal, hosted the event and, along with other renowned ALS researchers and clinicians, presented an overview and clarification of their ongoing clinical studies and scientific findings. Families and people living with ALS were also able to meet and exchange ideas with researchers […]
*Educational Webinar – A panel discussion on travel
A panel discussion on the joys and the challenges of travelling when you have ALS. Chantal Lanthier, Norm MacIsaac and Dale Gosselin Taylor all live with ALS and all travel on a regular basis. In a panel discussion, they, along with their spouses Jocelyn Théoret, Marie-Christine Tremblay and Rick Taylor, will share information about getting […]