I have ALS
*Educational webinar – ALSUntangled: Understanding alternative and off-label treatments (AOTs) for ALS
Have you ever been curious about possible ALS treatments you may have heard of or found online? ALSUntangled founder Dr. Richard Bedlack will explain how people living with ALS can […]
*Educational webinar: Spotlight on ALS Research and Q&A – June 9, 2026
Leading amyotrophic lateral sclerosis (ALS) researchers and clinicians shed light on their current clinical studies. Presentations are followed by a question-and-answer period. Dr. Richard Robitaille, Ph.D., Full Professor of Department […]
A selection of summer resources and activities for the ALS community and their loved ones
A selection of summer resources and activities for the ALS community and their loved ones. Other resources Important note This information is shared for informational purposes only. ALS Quebec cannot […]
*Educational webinar – Talking about ALS in the family: supporting children and adolescents
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing […]
Letters to ALS: Our Journeys to Hope
Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, […]
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of […]
Patients & families: 7 keys for navigating a life-changing diagnosis
Discover 7 essential steps to help patients and their families cope with a life-changing diagnosis. Practical advice to understand the illness, manage emotional impact, and organize daily support.
What to do when facing a serious illness: 3 sets of questions to ask your healthcare team
Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with […]