I am a family member or friend providing support
Info Santé 811
For non-urgent health issues, this free, confidential telephone consultation will connect you with a nurse. Available 24/7 to anyone living in Quebec.
I Don’t Know How to Die – Susan L. Paquin
A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.
You’re Not You: A Novel – Michelle Wildgen
In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.
Behind Those Eyes: Our Journey with ALS – Wanda Gushue
A woman reflects on the experience of caring for her husband after his ALS diagnosis and the ups and downs of their time navigating the disease.
Every Note Played – Lisa Genova
A novel about the ALS diagnosis of a celebrated concert pianist and its effect on his family, including his ex-wife.
Tuesdays with Morrie: An Old Man, a Young Man, and Life’s Greatest Lesson – Mitch Albom
Lessons in how to live, based on discussions between author Mitch Albom and his former college professor Morrie Schwartz who is dying of ALS.
*Guide For People Living with ALS
This comprehensive guide covers a range of topics about living with the disease and what to expect.
White Coat Black Art with Dr. Brian Goldman: Helping the caregiver recover
A caregiver shares the range of complex feelings she has experienced since the death of her husband.