I am a family member or friend providing support
*Educational Webinar – A panel discussion on travel
A panel discussion on the joys and the challenges of travelling when you have ALS. Chantal Lanthier, Norm MacIsaac and Dale Gosselin Taylor all live with ALS and all travel on a regular basis. In a panel discussion, they, along with their spouses Jocelyn Théoret, Marie-Christine Tremblay and Rick Taylor, will share information about getting […]
Speaking ALS – An Anthology
These stories are stories about life. The words are from those living with ALS, their loved ones, caregivers and others working in the ALS community throughout North America. There are happy stories, sad stories, stories sharing frustrations and stories trying to unwind the twisted threads of grief. ALS, amyotrophic lateral sclerosis, is a progressive neurodegenerative […]
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
*Educational Webinar – ENG – Resilience and ALS with Rachel Thibeault
This webinar offers some basic psychological resilience strategies easily applicable in daily life.
Baluchon Long-term Respite Care
Baluchon’s mission is to offer respite over several days to caregivers who wish to keep their non-autonomous loved ones at home, while supporting and providing guidance to the caregiver before and after the in-home respite care process. It is the only non-profit organization offering long-term in-home respite care (4 to 14 days), 24 hours a […]
Inkflower – Suza Zail
Lisa’s father has six months to live and a story to tell about a boy sent to Auschwitz – a boy who lost everything and started again. It’s a story he has kept hidden – until now. But Lisa doesn’t want to hear it because she has secrets too. No one at school knows she […]
Bereavement and post-caregiving
Caregivers experience various levels of ambiguous loss and grief throughout their lives. Following the death of someone they are caring for, they must also find themselves and reinvent their lives. Here are some tips on how to understand and get through these difficult stages.
Helping the person I am caring for with their request for medical aid in dying
How do you support the person you are caring for in their request for medical aid in dying? How can you assist them in this unique and singular process, while also respecting your own feelings?