I am a family member or friend providing support
*Educational Webinar – Kinesiology and ALS
Join us for the webinar Kinesiology and ALS with kinesiologist Billy-Ann Houle-Powers. Discover how adapted physical activity can help preserve functional abilities, reduce discomfort, and promote the well-being of people […]
*Zoom User Guide
A Zoom guide to facilitate access to ALS Quebec’s virtual activities. In order to help you with Zoom, we created a user guide. In the event of a technical issue, […]
A selection of summer resources and activities for the ALS community and their loved ones
A selection of summer resources and activities for the ALS community and their loved ones. Other resources Important note This information is shared for informational purposes only. ALS Quebec cannot […]
*Educational webinar – Talking about ALS in the family: supporting children and adolescents
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing […]
Letters to ALS: Our Journeys to Hope
Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, […]
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
Support guide for families and their relatives: Preparing Children for the Palliative Illness or Death of a Loved One by CIUSSS de l’Estrie – CHUS
This guide by CIUSSS de l’Estrie – CHUS was designed to help you support children coping with a relative’s illness in the palliative phase or death.
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of […]