I am a family member or friend providing support
*Educational webinar – Talking about ALS in the family: supporting children and adolescents
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing amyotrophic lateral sclerosis (ALS) based on children’s ages, answering difficult questions, and supporting their emotions. Isabelle will share her family’s journey with the disease — […]
Letters to ALS: Our Journeys to Hope
Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, the collection includes contributions from people living with ALS, family members, clinicians, healthcare professionals, researchers, and advocates. Together, these voices offer an intimate window into […]
*Educational Webinar – Tax credits
Organized in collaboration with Desjardins Wealth Management, this event provides practical advice to help you better understand the various tax credits you may be eligible for, including the tax credit for persons with disabilities, credits for caregivers, and the medical expense credit. This webinar will help you simplify your tax management and better equip you […]
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
Support guide for families and their relatives: Preparing Children for the Palliative Illness or Death of a Loved One by CIUSSS de l’Estrie – CHUS
This guide by CIUSSS de l’Estrie – CHUS was designed to help you support children coping with a relative’s illness in the palliative phase or death.
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
3 questions to ask yourself that make difficult conversations about serious illness easier
Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.
Patients & families: 7 keys for navigating a life-changing diagnosis
Discover 7 essential steps to help patients and their families cope with a life-changing diagnosis. Practical advice to understand the illness, manage emotional impact, and organize daily support.