Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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Speaking ALS – An Anthology

These stories are stories about life. The words are from those living with ALS, their loved ones, caregivers and others working in the ALS community throughout North America. There are happy stories, sad stories, stories sharing frustrations and stories trying to unwind the twisted threads of grief. ALS, amyotrophic lateral sclerosis, is a progressive neurodegenerative […]

ALSUntangled

ALSUntangled® reviews alternative and off label treatments, with the goal of helping people with ALS make more informed decisions about them.

*Educational Webinar – Nutrition & ALS (bilingual)

Madura Arunasalampillai, dietitian at the ALS clinic at the Montreal Neurological Hospital, will explain when it is appropriate to adjust the texture of meals as well as the consistency of drinks, and the reasons for these adjustments. She will also offer nutritional tips for people living with ALS. To complete the webinar, Marie-Michèle Aubé from […]

I can eat too!

We eat first with the eyes, then come the smells and finally the taste. his unique book offers 30 delicious and adapted recipes for people with dysphagia, allowing everyone to enjoy pleasant and well-presented meals.

Quebec Health Research

Find all the clinical trials available in Quebec and around the world in a few clicks, in real time, in both languages

Breaking the News in ALS/MND

A protocol on how deliver difficult news to people living with ALS that aims to increase healthcare professional comfort and confidence.

ClinicalTrials.gov

ClinicalTrials.gov is a place to learn about clinical studies from around the world.

*Educational Webinar – Medical aid in dying – an update with Maitre Hélène Guay

On October 30, 2024, the criteria relating to advance requests for medical assistance in dying came into force. Join us for a webinar with Maître Hélène Guay who explains the changes to the law and how they affect people living with ALS.

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