Resource Center | ALS Quebec

Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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What to do when facing a serious illness: 3 sets of questions to ask your healthcare team

Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with your doctors and caregivers.

Amyotrophic Lateral Sclerosis (ALS) Symptom Roadmap: Understanding Your Symptoms and Illness Impacts

Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare for the future. An essential tool for people living with ALS and their caregivers.

*Event: Spotlight on ALS Research and Q&A

December 15th, 2025 SLA Research Q&A Session “Leading ALS researchers and clinicians shed light on their current scientific studies and findings. Presentations were followed by a question-and-answer period. Dr. Richard Robitaille, Professor in the Department of Neurosciences at the University of Montreal, hosted the meeting. Updates on research and clinical trials Overview of the recent […]

*Educational Webinar – A Conversation Between Two Caregivers

Relive this inspiring webinar where two dynamic women, Linda Levine and Marie-Christine Tremblay, share their thoughts and experiences as caregivers with us. The activity begins with presentations by Linda and Marie-Christine, followed by a conversation between many of the caregivers in attendance. About Linda and Marie-Christine Linda Levine is an acclaimed motivation specialist who has […]

*Educational Webinar – Voice cloning with Sophie Dupont and Dr. Alex Cooper

Voice cloning is the most recent technological advancement for creating a voice, using artificial intelligence (AI) to generate a synthetic copy of a human’s voice. Sophie Dupont will explain how voice cloning works as well as the more traditional voice banking. Dr. Alec Cooper will share his experience of voice cloning, as a means to […]

*Educational Webinar — on PLS (Primary Lateral Sclerosis) and PMA (Progressive Muscular Atrophy), with Dr. Nicolas Dupré

Dr. Dupré explains what PLS (primary lateral sclerosis) and PMA (progressive muscular atrophy) are and how they differ from ALS. ALS Quebec also supports people with these two rare neurodegenerative diseases. Join us to find out more. Thanks to our new Wordly software, our webinars are now translated live. We invite you to activate subtitles […]

For people who are providing support in palliative care or at end of life and working – Proche aidance Québec

Compassionate care benefits: welcome assistance when caring for someone in palliative or end-of-life care

Caregiver-Work Reconciliation Project – Proche aidance Québec

Caregiving statistics and resources for workers and employers

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