This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
This guide by CIUSSS de l’Estrie – CHUS was designed to help you support children coping with a relative’s illness in the palliative phase or death.
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of […]
Discover 7 essential approaches to help healthcare providers support patients facing a life-changing diagnosis. Clinical and human-centered perspectives to strengthen communication, support, and comprehensive care.
Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.
Discover 7 essential steps to help patients and their families cope with a life-changing diagnosis. Practical advice to understand the illness, manage emotional impact, and organize daily support.
Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with […]
Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare […]
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