Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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FR
Canadian Virtual Hospice

Support and personalized information about advanced illness, palliative care, loss, and grief.

FR
ALS Pathways TM – An informational website by Mitsubishi Tanabe Pharma Canada Inc.

ALS resources and information for patients and caregivers.

FR
Speak-Up: Advance Care Planning Canada

Free resources about advance care planning so that loved ones know your wishes and values for future health care.

FR
Éducaloi-Your Starting Point for Legal Information

This organization explains the law in everyday language to help and empower Quebecers.

FR
Info Social 811

For non-urgent psychosocial concerns, this free, confidential service will connect you with a psychosocial worker. Available 24/7 to anyone living in Quebec.

FR
Info Santé 811

For non-urgent health issues, this free, confidential telephone consultation will connect you with a nurse. Available 24/7 to anyone living in Quebec.

I Don’t Know How to Die – Susan L. Paquin

A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.

You’re Not You: A Novel – Michelle Wildgen

In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.

ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.