Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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Thrive Through Self Care – Mitzi Perez & Melanie Richards

The author shares her personal experience caring for her father who has ALS, in order to help others in a similar situation.

MND: Margaret Young: “What I want volunteers and staff to know”

A palliative care educator and volunteer living with ALS (also known as MND) provides insight to her colleagues. Part of a series.

FR
Navigating the System – Jessica Smith

Support your loved one with ALS and take care of yourself by learning about available home care options.

FR
Guide to Programs for People with Disabilities, Their Families and Caregivers – Office des personnes handicapées du Québec (OPHQ)

Information about programs available through the Quebec government to support people with disabilities.

FR
*Guide For People Living with ALS

This comprehensive guide covers a range of topics about living with the disease and what to expect.

FR
*When Your Parent Has ALS – A Booklet For Teens

A booklet to help teens cope with a parent’s ALS diagnosis.

FR
Coping with Grief – Strategies for People Living with ALS

How to deal with feelings of grief and loss following an ALS diagnosis and as the disease progresses.

FR
*What to expect once you register at the CLSC – Ann-Marie Léporé

Learn about home care and what to expect once you have a file opened at the CLSC. Hosted by ALS Quebec for newly diagnosed people and their families.

ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.