This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
Lisa’s father has six months to live and a story to tell about a boy sent to Auschwitz – a boy who lost everything and started again. It’s a story he has kept hidden – until now. But Lisa doesn’t want to hear it because she has secrets too. No one at school knows she […]
Caregivers experience various levels of ambiguous loss and grief throughout their lives. Following the death of someone they are caring for, they must also find themselves and reinvent their lives. Here are some tips on how to understand and get through these difficult stages.
How do you support the person you are caring for in their request for medical aid in dying? How can you assist them in this unique and singular process, while also respecting your own feelings?
The person you are caring for wishes to decide in advance what medical care will be accepted or refused at the end of their life in the event that they are no longer able to make choices. How do you discuss advance medical directives with them?
What does it mean to treat oneself well as a person providing care? How does it translate to your daily life? Developing self-care skills means prioritizing your own wellbeing as well as that of the person for whom you are providing care.
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.
This magazine, available in English or in French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.
ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.
