Resource Center | ALS Quebec

Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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Info Santé 811

For non-urgent health issues, this free, confidential telephone consultation will connect you with a nurse. Available 24/7 to anyone living in Quebec.

I Don’t Know How to Die – Susan L. Paquin

A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.

Tales from the Bed: A Memoir – Jenifer Estess

In this memoir, a woman reflects on society’s definition of “having it all” after she is diagnosed with ALS in her 30s.

I Remember Running: The Year I Got Everything I Ever Wanted – and ALS – Darcy Wakefield

A woman’s story of change, loss and challenge in her first year living with ALS.

Rowing Without Oars – Ulla-Carin Lindquist

A woman diagnosed with ALS in the prime of her life chronicles her final years and reflects on how precious life is.

You’re Not You: A Novel – Michelle Wildgen

In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.

Augie’s Quest – Mitch Albom

Fitness pioneer Augie Nieto’s struggle with his ALS diagnosis inspires him to take action in beating the disease.

Behind Those Eyes: Our Journey with ALS – Wanda Gushue

A woman reflects on the experience of caring for her husband after his ALS diagnosis and the ups and downs of their time navigating the disease.

ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.