I have ALS
*Educational Webinar – ENG – Resilience and ALS with Rachel Thibeault
This webinar offers some basic psychological resilience strategies easily applicable in daily life.
Baluchon Long-term Respite Care
Baluchon’s mission is to offer respite over several days to caregivers who wish to keep their non-autonomous loved ones at home, while supporting and providing guidance to the caregiver before […]
Act Respecting End-of-Life Care
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be […]
*Bilingual Webinar : CAPTURE ALS
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites […]
*Educational Webinar – Consent to care
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.
Canadian Neuromuscular Disease Registry (CNDR)
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.
Clinical Trials Quebec
Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is […]
CAPTURE ALS
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.