I am a family member or friend providing support
*Bilingual Webinar : CAPTURE ALS
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
Luki & the Lights (with accompanying documentation)
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
*Educational Webinar – Consent to care
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.
Kare: The Magazine for Young Caregivers
This magazine, available in English or in French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.
Mother’s Day and Father’s Day when a child has lost a parent
Mother’s Day and Father’s Day can be especially difficult for children and youth grieving the death of a parent or step-parent. Canadian Virtual Hospice teamed up with children’s grief specialist Ceilidh Eaton Russell to create a new resource to help.
Pathways to Resilience
In a series of 6 webinars recorded at the beginning of the COVID-19 pandemic, occupational therapist and researcher Rachel Thibeault explores the concept of resilience.
Myra’s Kids Foundation
Our camp is a free, non-denominational bereavement camp for children and teenagers, ages 6 to 17, who are grieving a significant death.
Medical Assistance in Dying (MAID) – Activity Book
A workbook to help children understand, prepare for, and experience Medical Assistance in Dying (MAID) in the way that’s best for them.