News and media

Maintaining a sense of normalcy: a challenge for families affected by amyotrophic lateral sclerosis (ALS) For Isabelle’s family, the Youth Support initiative was just the help they needed to bring a little normalcy back into their lives. Vincent Bourque, Isabelle’s husband and father to Arielle, Charline, and Maria, was diagnosed with ALS in 2015 at the age of 40 and lived with the...

For many years, ALS Quebec has been bringing together people affected by amyotrophic lateral sclerosis (ALS) through our various support groups. These spaces for sharing and listening allow everyone to feel understood, supported, and less alone in facing the disease.  To better serve all those affected and their loved ones across Quebec, we're pleased to propose support...

The ALS Society of Canada is proud to announce the funding of a 2025 ALS Canada Discovery Grant in partnership with the ALS Québec – Dr. Jean-Pierre Canuel Fund, to support a research project led by Dr. Janice Robertson at the University of Toronto. The one-year, $125,000 grant will support Dr. Robertson and her team’s project, Mapping Alternative Polyadenylation and Splicing in ALS via...

You’ve probably heard of multiple sclerosis (MS) and amyotrophic lateral sclerosis (ALS), also known as Charcot’s disease or Lou Gehrig’s disease. Both conditions affect the nervous system, but they differ significantly in their causes, symptoms, and progression. Today, we want to clarify these distinctions to better guide,...