This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing amyotrophic lateral sclerosis (ALS) based on children’s ages, answering difficult questions, and supporting their emotions. Isabelle will share her family’s journey with the disease — […]
Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, the collection includes contributions from people living with ALS, family members, clinicians, healthcare professionals, researchers, and advocates. Together, these voices offer an intimate window into […]
Organized in collaboration with Desjardins Wealth Management, this event provides practical advice to help you better understand the various tax credits you may be eligible for, including the tax credit for persons with disabilities, credits for caregivers, and the medical expense credit. This webinar will help you simplify your tax management and better equip you […]
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
This guide by CIUSSS de l’Estrie – CHUS was designed to help you support children coping with a relative’s illness in the palliative phase or death.
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
Discover 7 essential approaches to help healthcare providers support patients facing a life-changing diagnosis. Clinical and human-centered perspectives to strengthen communication, support, and comprehensive care.
Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.
ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.
