Research & Treatment
Canadian Neuromuscular Disease Registry (CNDR)
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.
Clinical Trials Quebec
Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is […]
CAPTURE ALS
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.
Webinar – Biomusic: An assistive technology for communicating through your body’s music
In this webinar, presented by Stefanie Blain-Moraes* on October 31, 2023, you will learn about biomusic – an innovative assistive technology that records emotion-related changes in physiological signals and converts them into musical output.
*Event: Spotlight on ALS research
As part of ALS Awareness Month in June, we had the pleasure to host our second session Spotlight on ALS Research: answers to your questions and a chance to meet the […]
*Guide For People Living with ALS
This comprehensive guide covers a range of topics about living with the disease and what to expect.
Fact Sheets: Full collection – ALS Canada
A series of fact sheets providing quick information on a range of ALS-related topics.
Fact Sheets: ALS & Genetics – ALS Canada
Is genetic testing right for you? This fact sheet provides background as a first step to learning more.