*Event : Spotlight on ALS Research and Q&A session – June 10 2024

On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]

Canadian Neuromuscular Disease Registry (CNDR)

The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.

Clinical Trials Quebec

Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is an innovative provincial tool that provides high quality, complete, neutral, and accessible information on clinical research, as well as free services that improve access to […]


CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.

*Event: Spotlight on ALS Research and Q&A – February 19, 2024

Top ALS researchers talked about their work and answered the questions of the ALS Community.

Webinar – Biomusic: An assistive technology for communicating through your body’s music

In this webinar, presented by Stefanie Blain-Moraes* on October 31, 2023, you will learn about biomusic – an innovative assistive technology that records emotion-related changes in physiological signals and converts them into musical output.

*Event: Spotlight on ALS research

As part of ALS Awareness Month in June, we had the pleasure to host our second session Spotlight on ALS Research: answers to your questions and a chance to meet the researchers that took place on June 21, 2023. Dr. Richard Robitaille, Professor in the Department of Neurosciences at the University of Montreal, hosted this event. […]

Fact Sheets: Full collection – ALS Canada

A series of fact sheets providing quick information on a range of ALS-related topics.