Research & Treatment
*Event: Spotlight on ALS Research and Q&A – June 4, 2025
Dr. Richard Robitaille, professor in the Department of Neuroscience at the Université de Montréal, hosted the event and, along with other renowned ALS researchers and clinicians, presented an overview and clarification of their ongoing clinical studies and scientific findings. Families and people living with ALS were also able to meet and exchange ideas with researchers […]
ALSUntangled
ALSUntangled® reviews alternative and off label treatments, with the goal of helping people with ALS make more informed decisions about them.
Quebec Health Research
Find all the clinical trials available in Quebec and around the world in a few clicks, in real time, in both languages
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
*Bilingual Webinar : CAPTURE ALS
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
*Event : Spotlight on ALS Research and Q&A session – June 10 2024
On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]
Canadian Neuromuscular Disease Registry (CNDR)
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.
Clinical Trials Quebec
Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is an innovative provincial tool that provides high quality, complete, neutral, and accessible information on clinical research, as well as free services that improve access to […]