Caring for Yourself
Letters to ALS: Our Journeys to Hope
Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, the collection includes contributions from people living with ALS, family members, clinicians, healthcare professionals, researchers, and advocates. Together, these voices offer an intimate window into […]
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
Healthcare providers: 7 keys for navigating a life-changing diagnosis
Discover 7 essential approaches to help healthcare providers support patients facing a life-changing diagnosis. Clinical and human-centered perspectives to strengthen communication, support, and comprehensive care.
Patients & families: 7 keys for navigating a life-changing diagnosis
Discover 7 essential steps to help patients and their families cope with a life-changing diagnosis. Practical advice to understand the illness, manage emotional impact, and organize daily support.
*Educational Webinar – A Conversation Between Two Caregivers
Relive this inspiring webinar where two dynamic women, Linda Levine and Marie-Christine Tremblay, share their thoughts and experiences as caregivers with us. The activity begins with presentations by Linda and Marie-Christine, followed by a conversation between many of the caregivers in attendance. About Linda and Marie-Christine Linda Levine is an acclaimed motivation specialist who has […]
Speaking ALS – An Anthology
These stories are stories about life. The words are from those living with ALS, their loved ones, caregivers and others working in the ALS community throughout North America. There are happy stories, sad stories, stories sharing frustrations and stories trying to unwind the twisted threads of grief. ALS, amyotrophic lateral sclerosis, is a progressive neurodegenerative […]
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
*Educational Webinar – ENG – Resilience and ALS with Rachel Thibeault
This webinar offers some basic psychological resilience strategies easily applicable in daily life.