About ALS
Breaking the News in ALS/MND
A protocol on how deliver difficult news to people living with ALS that aims to increase healthcare professional comfort and confidence.
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
ReferALS Early Referral Tool
The ReferALS Early Referral Tool is part of the ReferALS program, which both physicians and patients can use to help prepare them on the steps for referral to a Canadian ALS Research Network (CALS) Clinic.
ALS for Dummies
Information and advice for people affected by ALS, from the perspective of a French musician who has lived with the disease since 2015.
ALS Pathways TM – An informational website by Mitsubishi Tanabe Pharma Canada Inc.
ALS resources and information for patients and caregivers.
I Don’t Know How to Die – Susan L. Paquin
A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.
Tales from the Bed: A Memoir – Jenifer Estess
In this memoir, a woman reflects on society’s definition of “having it all” after she is diagnosed with ALS in her 30s.
I Remember Running: The Year I Got Everything I Ever Wanted – and ALS – Darcy Wakefield
A woman’s story of change, loss and challenge in her first year living with ALS.