ReferALS Early Referral Tool

The ReferALS Early Referral Tool is part of the ReferALS program, which both physicians and patients can use to help prepare them on the steps for referral to a Canadian ALS Research Network (CALS) Clinic.

ALS for Dummies

Information and advice for people affected by ALS, from the perspective of a French musician who has lived with the disease since 2015.

ALS Pathways TM – An informational website by Mitsubishi Tanabe Pharma Canada Inc.

ALS resources and information for patients and caregivers.

I Don’t Know How to Die – Susan L. Paquin

A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.

Tales from the Bed: A Memoir – Jenifer Estess

In this memoir, a woman reflects on society’s definition of “having it all” after she is diagnosed with ALS in her 30s.

I Remember Running: The Year I Got Everything I Ever Wanted – and ALS – Darcy Wakefield

A woman’s story of change, loss and challenge in her first year living with ALS.

Rowing Without Oars – Ulla-Carin Lindquist

A woman diagnosed with ALS in the prime of her life chronicles her final years and reflects on how precious life is.

You’re Not You: A Novel – Michelle Wildgen

In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.