About ALS
*Educational webinar – Talking about ALS in the family: supporting children and adolescents
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing amyotrophic lateral sclerosis (ALS) based on children’s ages, answering difficult questions, and supporting their emotions. Isabelle will share her family’s journey with the disease — […]
*Educational Webinar — on PLS (Primary Lateral Sclerosis) and PMA (Progressive Muscular Atrophy), with Dr. Nicolas Dupré
Dr. Dupré explains what PLS (primary lateral sclerosis) and PMA (progressive muscular atrophy) are and how they differ from ALS. ALS Quebec also supports people with these two rare neurodegenerative diseases. Join us to find out more. Thanks to our new Wordly software, our webinars are now translated live. We invite you to activate subtitles […]
Speaking ALS – An Anthology
These stories are stories about life. The words are from those living with ALS, their loved ones, caregivers and others working in the ALS community throughout North America. There are happy stories, sad stories, stories sharing frustrations and stories trying to unwind the twisted threads of grief. ALS, amyotrophic lateral sclerosis, is a progressive neurodegenerative […]
Breaking the News in ALS/MND
A protocol on how deliver difficult news to people living with ALS that aims to increase healthcare professional comfort and confidence.
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
ReferALS Early Referral Tool
The ReferALS Early Referral Tool is part of the ReferALS program, which both physicians and patients can use to help prepare them on the steps for referral to a Canadian ALS Research Network (CALS) Clinic.
ALS for Dummies
Information and advice for people affected by ALS, from the perspective of a French musician who has lived with the disease since 2015.
ALS Pathways TM – An informational website by Mitsubishi Tanabe Pharma Canada Inc.
ALS resources and information for patients and caregivers.