Amyotrophic Lateral Sclerosis (ALS) Symptom Roadmap: Understanding Your Symptoms and Illness Impacts
Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare for the future. An essential tool for people living with ALS and their caregivers.
For people who are providing support in palliative care or at end of life and working – Proche aidance Québec
Compassionate care benefits: welcome assistance when caring for someone in palliative or end-of-life care
Caregiver-Work Reconciliation Project – Proche aidance Québec
Caregiving statistics and resources for workers and employers
Caregiving-work reconciliation measures: for employers – Proche aidance Québec
A definition of caregiving, and some things to consider when supporting your employees in this role.
For people who are providing support and working – Proche aidance Québec
A definition of caregiving, as well as some of the rights and tax programs that benefit them when they are also working a paid job.
Breaking the News in ALS/MND
A protocol on how deliver difficult news to people living with ALS that aims to increase healthcare professional comfort and confidence.
Luki & the Lights (with accompanying documentation)
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
Kare: The Magazine for Young Caregivers
This magazine, available in English or in French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.