Luki & the Lights (with accompanying documentation)
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
Kare: The Magazine for Young Caregivers
This magazine, available in English or in French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.
Mother’s Day and Father’s Day when a child has lost a parent
Mother’s Day and Father’s Day can be especially difficult for children and youth grieving the death of a parent or step-parent. Canadian Virtual Hospice teamed up with children’s grief specialist Ceilidh Eaton Russell to create a new resource to help.
ReferALS Early Referral Tool
The ReferALS Early Referral Tool is part of the ReferALS program, which both physicians and patients can use to help prepare them on the steps for referral to a Canadian ALS Research Network (CALS) Clinic.
Medical Assistance in Dying (MAID) – Activity Book
A workbook to help children understand, prepare for, and experience Medical Assistance in Dying (MAID) in the way that’s best for them.
Grandpa, What is ALS? – ALS Society of Alberta
A children’s story about love, acceptance and understanding when a grandfather is diagnosed with ALS.
Reducing Work-Life Conflict: What Works? What Doesn’t? – Dr. Chris Higgins, Ph. D.,Dr. Linda Duxbury, Ph. D.,et Sean Lyons, Ph. D.
Findings from Health Canada-funded research into the coping strategies that people and families use when facing stressful events and circumstances.
Fact Sheets: Full collection – ALS Canada
A series of fact sheets providing quick information on a range of ALS-related topics.