Navigating the healthcare system & Options for Care
Fact Sheets: Palliative Care and End-of-life Planning in ALS – ALS Canada
Learn about palliative care, end-of-life care, advance care planning, care decisions and medical aid in dying.
Navigating the System – Jessica Smith
Support your loved one with ALS and take care of yourself by learning about available home care options.
Canadian Best Practice Recommendations for the Management of Amyotrophic Lateral Sclerosis (ALS)
This paper by specialists in ALS care documents their recommendations for providing quality care to Canadians with ALS.
The ‘How To’ Health Guide – 2016 Edition – Health Charities Coalition of Canada
Learn about Canada’s healthcare system and how to navigate it to receive the best possible care.
*What to expect once you register at the CLSC – Ann-Marie Léporé
Learn about home care and what to expect once you have a file opened at the CLSC. Hosted by ALS Quebec for newly diagnosed people and their families.
*Medical aid in dying and organ donation – Sophie Villemaire & Lysane Desrosiers, nurses
A March 2022 presentation by staff at the CHUM ALS clinic and Transplant Quebec. Hosted by ALS Quebec.
*Palliative Care Conference – Anita Mehta, RN, PhD, CFT and Véronique Després, SW
An introduction to palliative care and its role in ALS, implications for family members, and an overview of available services and facilities at two different palliative care centres. Hosted by ALS Quebec.
*Telehealth: an advantage for the ALS clinic – Dr. Geneviève Matte
This webinar discusses the use of telehealth to provide ALS care during the pandemic. Hosted by ALS Quebec.