Navigating the healthcare system & Options for Care
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
3 questions to ask yourself that make difficult conversations about serious illness easier
Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.
What to do when facing a serious illness: 3 sets of questions to ask your healthcare team
Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with your doctors and caregivers.
Amyotrophic Lateral Sclerosis (ALS) Symptom Roadmap: Understanding Your Symptoms and Illness Impacts
Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare for the future. An essential tool for people living with ALS and their caregivers.
*Educational Webinar – Medical aid in dying – an update with Maitre Hélène Guay
On October 30, 2024, the criteria relating to advance requests for medical assistance in dying came into force. Join us for a webinar with Maître Hélène Guay who explains the changes to the law and how they affect people living with ALS.
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions
Baluchon Long-term Respite Care
Baluchon’s mission is to offer respite over several days to caregivers who wish to keep their non-autonomous loved ones at home, while supporting and providing guidance to the caregiver before and after the in-home respite care process. It is the only non-profit organization offering long-term in-home respite care (4 to 14 days), 24 hours a […]
Medical Assistance in Dying (MAID) – Activity Book
A workbook to help children understand, prepare for, and experience Medical Assistance in Dying (MAID) in the way that’s best for them.