Adapting to Life with ALS
*Educational webinar – Talking about ALS in the family: supporting children and adolescents
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing amyotrophic lateral sclerosis (ALS) based on children’s ages, answering difficult questions, and supporting their emotions. Isabelle will share her family’s journey with the disease — […]
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
Healthcare providers: 7 keys for navigating a life-changing diagnosis
Discover 7 essential approaches to help healthcare providers support patients facing a life-changing diagnosis. Clinical and human-centered perspectives to strengthen communication, support, and comprehensive care.
3 questions to ask yourself that make difficult conversations about serious illness easier
Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.
What to do when facing a serious illness: 3 sets of questions to ask your healthcare team
Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with your doctors and caregivers.
Amyotrophic Lateral Sclerosis (ALS) Symptom Roadmap: Understanding Your Symptoms and Illness Impacts
Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare for the future. An essential tool for people living with ALS and their caregivers.
*Educational Webinar – A panel discussion on travel
A panel discussion on the joys and the challenges of travelling when you have ALS. Chantal Lanthier, Norm MacIsaac and Dale Gosselin Taylor all live with ALS and all travel on a regular basis. In a panel discussion, they, along with their spouses Jocelyn Théoret, Marie-Christine Tremblay and Rick Taylor, will share information about getting […]
Roon
Roon’s mission is to reimagine the internet for health with trust and expert curation at its core. Explore video Q&As with healthcare professionals, people living with ALS, and caregivers to get answers to your questions