Adapting to Life with ALS
*Online demonstration of Vocality
Discover Vocality, a Quebec-based communication app for people experiencing severe speech loss, during an online demonstration presented by one of its co-founders, Thomas Houlachi. ** Reminder to always work with your healthcare team to see which tools are best for your particular situation.
*Educational Webinar – Technical aids, equipment, and home adaptation
Led by an occupational therapist from CLSC Montmagny-L’Islet, this webinar will walk us through the kinds of technical aids, equipment, and home adaptations that can make daily living with ALS easier. We will also discuss what is covered through various healthcare system programs and what expenses may remain your responsibility. When certain needs are not […]
A selection of summer resources and activities for the ALS community and their loved ones
A selection of summer resources and activities for the ALS community and their loved ones. Other resources Important note This information is shared for informational purposes only. ALS Quebec cannot be held responsible for the relevance or availability of these resources based on your personal situation.
*Educational webinar – Talking about ALS in the family: supporting children and adolescents
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing amyotrophic lateral sclerosis (ALS) based on children’s ages, answering difficult questions, and supporting their emotions. Isabelle will share her family’s journey with the disease — […]
Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
Healthcare providers: 7 keys for navigating a life-changing diagnosis
Discover 7 essential approaches to help healthcare providers support patients facing a life-changing diagnosis. Clinical and human-centered perspectives to strengthen communication, support, and comprehensive care.
3 questions to ask yourself that make difficult conversations about serious illness easier
Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.
What to do when facing a serious illness: 3 sets of questions to ask your healthcare team
Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with your doctors and caregivers.