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Talking about advance medical directives with the person to whom I am providing care
The person you are caring for wishes to decide in advance what medical care will be accepted or refused at the end of their life in the event that they are no longer able to make choices. How do you discuss advance medical directives with them?
Act Respecting End-of-Life Care
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be introduced at disputed times. More specific information will be added as these provisions come into force.
Being kind to yourself
What does it mean to treat oneself well as a person providing care? How does it translate to your daily life? Developing self-care skills means prioritizing your own wellbeing as well as that of the person for whom you are providing care.
Canadian Neuromuscular Disease Registry (CNDR)
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.
Clinical Trials Quebec
Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is an innovative provincial tool that provides high quality, complete, neutral, and accessible information on clinical research, as well as free services that improve access to […]
CAPTURE ALS
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.
Myra’s Kids Foundation
Our camp is a free, non-denominational bereavement camp for children and teenagers, ages 6 to 17, who are grieving a significant death.
Québec.ca – What to Do In the Event of Death
A guide from the government of Quebec about steps to take after someone dies.