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Bereavement and post-caregiving
Caregivers experience various levels of ambiguous loss and grief throughout their lives. Following the death of someone they are caring for, they must also find themselves and reinvent their lives. […]
Helping the person I am caring for with their request for medical aid in dying
How do you support the person you are caring for in their request for medical aid in dying? How can you assist them in this unique and singular process, while […]
Talking about advance medical directives with the person to whom I am providing care
The person you are caring for wishes to decide in advance what medical care will be accepted or refused at the end of their life in the event that they […]
Act Respecting End-of-Life Care
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be […]
Being kind to yourself
What does it mean to treat oneself well as a person providing care? How does it translate to your daily life? Developing self-care skills means prioritizing your own wellbeing as […]
Canadian Neuromuscular Disease Registry (CNDR)
The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.
Clinical Trials Quebec
Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is […]
CAPTURE ALS
CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.