Canadian Neuromuscular Disease Registry (CNDR)

The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry of people diagnosed with neuromuscular diseases including ALS.

Clinical Trials Quebec

Clinical Trials Quebec (CTQ) is an information and services hub for all things clinical research, powered by the CATALIS Network and developed in partnership with the Quebec government. CTQ is an innovative provincial tool that provides high quality, complete, neutral, and accessible information on clinical research, as well as free services that improve access to […]


CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS.

Myra’s Kids Foundation

Our camp is a free, non-denominational bereavement camp for children and teenagers, ages 6 to 17, who are grieving a significant death.

Qué – What to Do In the Event of Death

A guide from the government of Quebec about steps to take after someone dies.

NOVA West Island

This organization develops and provides a range of free or low-cost health services to vulnerable people on the West Island of Montreal.

Qué – Informal and family caregiver

An overview of informal and family caregivers: who they are, what they do, what their needs are and some of the resources and programs available.

Curateur public du Québec

This organization protects the best interests, rights and autonomy of incapable persons.