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*Bilingual Webinar : CAPTURE ALS

With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]

Kare: The Magazine for Young Caregivers

This magazine, available in English or in French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.

Pathways to Resilience

In a series of 6 webinars recorded at the beginning of the COVID-19 pandemic, occupational therapist and researcher Rachel Thibeault explores the concept of resilience.

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ReferALS Early Referral Tool

The ReferALS Early Referral Tool is part of the ReferALS program, which both physicians and patients can use to help prepare them on the steps for referral to a Canadian ALS Research Network (CALS) Clinic.

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Québec.ca

Official website of the Québec government.

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Canadian Virtual Hospice

Support and personalized information about advanced illness, palliative care, loss, and grief.

MND: Margaret Young: “What I want volunteers and staff to know”

A palliative care educator and volunteer living with ALS (also known as MND) provides insight to her colleagues. Part of a series.

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Canadian Best Practice Recommendations for the Management of Amyotrophic Lateral Sclerosis (ALS)

This paper by specialists in ALS care documents their recommendations for providing quality care to Canadians with ALS.