November

Educational Webinar – The role of caregivers and...

November 5, 2024
12 h — 13 h / 12 p.m. — 1 p.m.

This webinar aims to raise awareness and provide essential information on the role of caregivers. We will explore their varied profiles, their needs, the repercussions of their commitment, as well as strategies to prevent burnout. We will also present the different resources and services offered by L’Appui to better support caregivers in their role. If […]

September

Bilingual Webinar : CAPTURE ALS

September 24, 2024
13 h 30 — 14 h 30 / 1:30 p.m. — 2:30 pm

With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]

June

Spotlight on ALS Research and Q&A

June 10, 2024
6 to 8 p.m.

Join us for our Spotlight on ALS Research and Q&A! Top ALS researchers will shine the light on their work, followed by a question-and-answer period. Dr. Richard Robitaille, Professor in the Department of Neurosciences at the University of Montreal, will be hosting the meeting. When: Monday, June 10, 2024 Time: 6 to 8 p.m. Where: The meeting will […]

May

Educational Webinar (In French) – Consent to care

May 28, 2024
13 h 30 – 15 h / 1:30 p.m. - 3 p.m.

English webinar will be on June 4 – Consent to care – a webinar explaining what consent to care means in legal terms and why it is essential to your journey with ALS. Maître Hélène Guay will inform and share her reflections on this right in matters of health. https://us02web.zoom.us/meeting/register/tZMudu2vrDksGdV1Fkomit4pUl7JFozyuj0m    This webinar session is in […]

June

Educational Webinar – Consent to Care with Maitre...

June 4, 2024
10:30 a.m. – 12 p.m.

Consent to care – a webinar explaining what consent to care means in legal terms and why it is essential to your journey with ALS. Maître Hélène Guay will inform and share her reflections on this right in matters of health. https://us02web.zoom.us/meeting/register/tZMudu2vrDksGdV1Fkomit4pUl7JFozyuj0m    If you are not familiar with Zoom, or with online communications, please consult […]

April

Educational Webinar – Breathing and ALS

April 23, 2024
10 h 30 – 12 h / 10:30 a.m. – 12 p.m.

Webinar with Véronique Adam, Respiratory Therapist. ALS affects the respiratory system in different ways. During this webinar, we will identify the different respiratory impairments and the therapies that can be used to alleviate the various symptoms. We’ll also look at the role of the respiratory therapist, one of the professionals who can help you manage […]

April

Regional Conference – Saint-Jean-sur-Richelieu (cancelled)

April 16, 2024
13 h – 15 h 30 / 1 – 3:30 p.m.

This conference, given by Dr. Geneviève Matte, neurologist at the CHUM’s ALS Clinic, will focus on learning more about ALS and answer any questions you may have about the disease. Two ALS Quebec professionals will also be present: Kate Busch, coordinator and Geneviève Gladu, counsellor. They will welcome you at 1 p.m. (with coffee and […]

March

Webinar with Dr. Chantal Morency on end-of-life care options for people living with ALS. Conversations around possible care options for end-of-life can be difficult. Dre. Morency will present all of the options that are available to people living with ALS, with the objective of empowering by knowledge so that an informed decision can be made […]