This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
Compassionate care benefits: welcome assistance when caring for someone in palliative or end-of-life care
Caregiving statistics and resources for workers and employers
A definition of caregiving, and some things to consider when supporting your employees in this role.
A definition of caregiving, as well as some of the rights and tax programs that benefit them when they are also working a paid job.
Dr. Richard Robitaille, professor in the Department of Neuroscience at the Université de Montréal, hosted the event and, along with other renowned ALS researchers and clinicians, presented an overview and clarification of their ongoing clinical studies and scientific findings. Families and people living with ALS were also able to meet and exchange ideas with researchers […]
A panel discussion on the joys and the challenges of travelling when you have ALS. Chantal Lanthier, Norm MacIsaac and Dale Gosselin Taylor all live with ALS and all travel on a regular basis. In a panel discussion, they, along with their spouses Jocelyn Théoret, Marie-Christine Tremblay and Rick Taylor, will share information about getting […]
These stories are stories about life. The words are from those living with ALS, their loved ones, caregivers and others working in the ALS community throughout North America. There are happy stories, sad stories, stories sharing frustrations and stories trying to unwind the twisted threads of grief. ALS, amyotrophic lateral sclerosis, is a progressive neurodegenerative […]
ALSUntangled® reviews alternative and off label treatments, with the goal of helping people with ALS make more informed decisions about them.
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