Resource Center | ALS Quebec

Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.

Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.

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Hope for the Best, Plan for the Rest: 7 Keys for Navigating a Life-Changing Diagnosis by Samantha Winemaker & Hsien Seow

In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.

Healthcare providers: 7 keys for navigating a life-changing diagnosis

Discover 7 essential approaches to help healthcare providers support patients facing a life-changing diagnosis. Clinical and human-centered perspectives to strengthen communication, support, and comprehensive care.

3 questions to ask yourself that make difficult conversations about serious illness easier

Discover three essential questions to help support difficult conversations about serious illness. A practical tool for healthcare professionals to discuss diagnosis, expectations, and important decisions with patients.

Patients & families: 7 keys for navigating a life-changing diagnosis

Discover 7 essential steps to help patients and their families cope with a life-changing diagnosis. Practical advice to understand the illness, manage emotional impact, and organize daily support.

What to do when facing a serious illness: 3 sets of questions to ask your healthcare team

Discover 3 essential sets of questions to ask your healthcare team to better understand your illness, treatment options, and prepare for the future. A practical tool to facilitate communication with your doctors and caregivers.

Amyotrophic Lateral Sclerosis (ALS) Symptom Roadmap: Understanding Your Symptoms and Illness Impacts

Discover our comprehensive guide to understanding the symptoms of amyotrophic lateral sclerosis (ALS). Learn how to identify early signs, track disease progression, communicate your needs with healthcare professionals, and prepare for the future. An essential tool for people living with ALS and their caregivers.

*Event: Spotlight on ALS Research and Q&A

December 15th, 2025 SLA Research Q&A Session “Leading ALS researchers and clinicians shed light on their current scientific studies and findings. Presentations were followed by a question-and-answer period. Dr. Richard Robitaille, Professor in the Department of Neurosciences at the University of Montreal, hosted the meeting. Updates on research and clinical trials Overview of the recent […]

*Educational Webinar – A Conversation Between Two Caregivers

Relive this inspiring webinar where two dynamic women, Linda Levine and Marie-Christine Tremblay, share their thoughts and experiences as caregivers with us. The activity begins with presentations by Linda and Marie-Christine, followed by a conversation between many of the caregivers in attendance. About Linda and Marie-Christine Linda Levine is an acclaimed motivation specialist who has […]

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