Appui proches aidants

Appui supports you as a caregiver as well as the organizations that help you.

ALS Pathways TM – An informational website by Mitsubishi Tanabe Pharma Canada Inc.

ALS resources and information for patients and caregivers.

Info Social 811

For non-urgent psychosocial concerns, this free, confidential service will connect you with a psychosocial worker. Available 24/7 to anyone living in Quebec.

I Don’t Know How to Die – Susan L. Paquin

A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.

Tales from the Bed: A Memoir – Jenifer Estess

In this memoir, a woman reflects on society’s definition of “having it all” after she is diagnosed with ALS in her 30s.

I Remember Running: The Year I Got Everything I Ever Wanted – and ALS – Darcy Wakefield

A woman’s story of change, loss and challenge in her first year living with ALS.

Rowing Without Oars – Ulla-Carin Lindquist

A woman diagnosed with ALS in the prime of her life chronicles her final years and reflects on how precious life is.

You’re Not You: A Novel – Michelle Wildgen

In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.