This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
Caregivers experience various levels of ambiguous loss and grief throughout their lives. Following the death of someone they are caring for, they must also find themselves and reinvent their lives. Here are some tips on how to understand and get through these difficult stages.
How do you support the person you are caring for in their request for medical aid in dying? How can you assist them in this unique and singular process, while also respecting your own feelings?
The person you are caring for wishes to decide in advance what medical care will be accepted or refused at the end of their life in the event that they are no longer able to make choices. How do you discuss advance medical directives with them?
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be introduced at disputed times. More specific information will be added as these provisions come into force.
What does it mean to treat oneself well as a person providing care? How does it translate to your daily life? Developing self-care skills means prioritizing your own wellbeing as well as that of the person for whom you are providing care.
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]
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