This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
The person you are caring for wishes to decide in advance what medical care will be accepted or refused at the end of their life in the event that they are no longer able to make choices. How do you discuss advance medical directives with them?
On June 7, 2023, the Assemblée nationale du Québec adopted the Act to amend the Act respecting end-of-life care and other legislative provisions. The amendments have been or will be introduced at disputed times. More specific information will be added as these provisions come into force.
What does it mean to treat oneself well as a person providing care? How does it translate to your daily life? Developing self-care skills means prioritizing your own wellbeing as well as that of the person for whom you are providing care.
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.
This magazine, available in English or in French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.
ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.
