This online resource centre is updated regularly and has been designed as a one-stop shop for comprehensive information about all aspects of ALS. Use the filters to hone in on the specific information you’re looking for, or browse the full offering. Resources developed and/or offered by ALS Quebec are marked with an asterisk (*).
Be sure to bookmark this page and check in frequently as we are regularly adding new resources. If you’ve found a resource particularly helpful and don’t see it listed here, please recommend it to us by emailing info@sla-quebec.ca.
Please note there may be additional resources within the French section of our website. The FR icon means that the resource is also available in French.
Join us for the webinar Kinesiology and ALS with kinesiologist Billy-Ann Houle-Powers. Discover how adapted physical activity can help preserve functional abilities, reduce discomfort, and promote the well-being of people living with ALS. You will learn how to move differently in ways that are safe and beneficial.
A Zoom guide to facilitate access to ALS Quebec’s virtual activities. In order to help you with Zoom, we created a user guide. In the event of a technical issue, do not hesitate to contact us at 514-725-2653, extension 105 or by email at support@sla-quebec.ca
A selection of summer resources and activities for the ALS community and their loved ones. Other resources Important note This information is shared for informational purposes only. ALS Quebec cannot be held responsible for the relevance or availability of these resources based on your personal situation.
This panel and discussion is facilitated by Justine Hugh, social worker and clinical director at Deuil-Jeunesse, and Isabelle Lessard, former caregiver. Justine provides concrete guidance and practical tools for discussing amyotrophic lateral sclerosis (ALS) based on children’s ages, answering difficult questions, and supporting their emotions. Isabelle will share her family’s journey with the disease — […]
Letters to ALS: Our Journeys to Hope is a unique new book of deeply personal letters from members of the amyotrophic lateral sclerosis (ALS) community. Presented as “Dear ALS” letters, the collection includes contributions from people living with ALS, family members, clinicians, healthcare professionals, researchers, and advocates. Together, these voices offer an intimate window into […]
Real Kids Talk About ALS – Feeling Normal, Sad, and Different by Melinda S. Kavanaugh & Megan Howard
This guide by CIUSSS de l’Estrie – CHUS was designed to help you support children coping with a relative’s illness in the palliative phase or death.
In Hope for the Best, Plan for the Rest, Dr. Hsien Seow and Dr. Samantha (Sammy) Winemaker share seven practical keys to improve the illness experience from the moment of diagnosis. Through real-life stories, actionable tips, and reflective exercises, this guide helps patients, families, and care teams navigate a life-changing diagnosis with clarity and confidence.
ALS Quebec does not endorse and is not responsible for the information contained on external sites. Should you have questions about any of the services or require additional information, please contact the organizations directly. These links are provided as a convenience and should not be construed as endorsements of any of the organizations.
