Video
Breaking the News in ALS/MND
A protocol on how deliver difficult news to people living with ALS that aims to increase healthcare professional comfort and confidence.
*Educational Webinar – Medical aid in dying – an update with Maitre Hélène Guay
On October 30, 2024, the criteria relating to advance requests for medical assistance in dying came into force. Join us for a webinar with Maître Hélène Guay who explains the changes to the law and how they affect people living with ALS.
*Educational Webinar – ENG – Resilience and ALS with Rachel Thibeault
This webinar offers some basic psychological resilience strategies easily applicable in daily life.
*Bilingual Webinar : CAPTURE ALS
With panelists from CHUM, the Neuro and the CHU de Québec on CAPTURE (Comprehensive Analysis Platform To Understand, Remedy, and Eliminate) ALS. CAPTURE ALS is a Canadian platform that unites patients, physicians and researchers in academia and industry to study ALS. CAPTURE ALS provides the systems and tools necessary to collect, store, and analyze vast […]
Luki & the Lights (with accompanying documentation)
LUKi & the Lights is a silent film – using no language, only sound, to tell the story of LUKi and ALS/MND. That way, children and families around the world can easily watch it!
Be sure to make use of the accompanying documentation, it will help grown ups who want to discuss the movie with children.
*Event : Spotlight on ALS Research and Q&A session – June 10 2024
On June 10, 2024, leading ALS researchers shed light on their research and answered questions from the ALS community. The meeting was moderated by Dr. Richard Robitaille, Full Professor in the Department of Neurosciences at the Université de Montréal. This event was an excellent opportunity for families and people living with ALS to ask their […]
*Educational Webinar – Consent to care
A webinar by maître Hélène Guay explaining what consent to care means in legal terms and why it is essential to your journey with ALS.
Pathways to Resilience
In a series of 6 webinars recorded at the beginning of the COVID-19 pandemic, occupational therapist and researcher Rachel Thibeault explores the concept of resilience.