I Don’t Know How to Die – Susan L. Paquin

A touching account of a family’s experience as they bear witness to their mother’s ALS diagnosis and journey.

Tales from the Bed: A Memoir – Jenifer Estess

In this memoir, a woman reflects on society’s definition of “having it all” after she is diagnosed with ALS in her 30s.

I Remember Running: The Year I Got Everything I Ever Wanted – and ALS – Darcy Wakefield

A woman’s story of change, loss and challenge in her first year living with ALS.

Rowing Without Oars – Ulla-Carin Lindquist

A woman diagnosed with ALS in the prime of her life chronicles her final years and reflects on how precious life is.

You’re Not You: A Novel – Michelle Wildgen

In this novel, a young woman adrift in her life is profoundly influenced by her work experience caring for a woman with ALS.

Augie’s Quest – Mitch Albom

Fitness pioneer Augie Nieto’s struggle with his ALS diagnosis inspires him to take action in beating the disease.

Behind Those Eyes: Our Journey with ALS – Wanda Gushue

A woman reflects on the experience of caring for her husband after his ALS diagnosis and the ups and downs of their time navigating the disease.

Every Note Played – Lisa Genova

A novel about the ALS diagnosis of a celebrated concert pianist and its effect on his family, including his ex-wife.