Stories

As part of National Caregiver Appreciation Week, Chantal Lanthier shares her testimonial to highlight the valuable contribution of her husband and friends in her daily life.
I have ants in my pants!
When our life hourglass runs out, we feel a great urgency to live, a real need to celebrate

“With change comes adjustment and resilience.” – Odette Lacroix
Back in 2001, when my husband Pierre was diagnosed with ALS, the outlook for people living with the disease was very different. At the time, there was only one support group in the entire province, so we had to travel to

“The pandemic is taking a toll on caregivers” – Jocelyn Théorêt
Since the start of the pandemic, many people have asked me how I’ve been coping with the lockdown. My first instinct is always to say that it hasn’t made much difference to me, since I’m always at home helping

OUR LOCKDOWN IS REAL.
Locked inside my own body, confined to my wheelchair, deprived of my independence and freedom.
The COVID-19 pandemic and Amyotrophic lateral sclerosis (ALS), better known as Lou Gehrig’s disease, have a lot in common.
The pandemic has forced us all to isolate to some degree,

By Chantal Lanthier, living with ALS since 2013
Illusion
“You’re only as old as you feel!”
We’ve all heard that expression, right? Obviously, the older you get, the more your body starts to fail you. Yet, many of the older people I know tell me they feel “young inside” and

By Chantal Lanthier, living with ALS since 2013
At a loss for words
I’m often told that my eyes speak volumes. Good thing, because I don’t have a voice anymore. Of all the losses I’ve had to go through over the past five years because of this disease, my voice

Are you more a beach person or a hiking person? When you think about relaxing, what comes to mind? I’m sure that whatever you pictured, it has something to do with nature. As for me, I can’t get enough of long walks in the woods. The time I spend surrounded