Maintaining a sense of normalcy: a challenge for families affected by amyotrophic lateral sclerosis (ALS)
For Isabelle’s family, the Youth Support initiative was just the help they needed to bring a little normalcy back into their lives. Vincent Bourque, Isabelle’s husband and father to Arielle, Charline, and Maria, was diagnosed with ALS in 2015 at the age of 40 and lived with the disease for three years.
Throughout the challenges of ALS and the profound changes it brought to their family life—from the moment of diagnosis until their father’s passing—the girls were able to continue pursuing the activities that were most important to them. They were able to grow, thrive, and move forward with remarkable strength, even during the most difficult times.
Arielle was able to continue her riding lessons. Today, she has become an equestrian trainer.
Charline continued practicing judo and is now a Canadian champion.
Maria completed her swimming lessons, a path that led her to work for the Coast Guard while earning a bachelor’s degree in marine biology.
Isabelle emphasizes just how essential these activities have been, made possible thanks to the Youth Support initiative:
“It has allowed them to experience moments of joy and carefree fun, to feel like other kids their age, and to maintain a sense of balance.”
Beyond athletic or academic skills, it was confidence, motivation, and stability that were nurtured—valuable pillars for young people facing difficult circumstances.
A respite for parents in a difficult reality
The disease brings with it a host of emotions, fatigue, and uncertainties. For parents, every moment of respite counts, and financial support has also played a vital role. Knowing that their children were being supported and could continue to thrive offered Isabelle and Vincent a sense of comfort that is hard to put into words. She adds:
“It also helped us feel that we’re not alone and that our reality is acknowledged. Plus, those moments when the kids are happy (and ‘playing’ somewhere else) let us rest and recharge our batteries.”
A message to families: You are not alone
Isabelle wants to encourage all families affected by ALS to take advantage of this assistance.
“I would tell other families not to hesitate to ask for this help. It’s a way to take care of your family during a difficult time. You don’t have to go through this alone.”
She reminds us that this support can transform daily life, both for children and for parents, who carry so much on their shoulders.
From beneficiary to partner
After facing many challenges, Vincent and Isabelle wanted to make a meaningful gesture by establishing the Vincent-Bourque Foundation, whose mission is to support research and families affected by ALS. Their support is a natural extension of the help they themselves received and is a way for them to give back.
As the Bourque family’s story clearly illustrates, the Youth Support initiative goes beyond financial assistance by providing children and their families with the conditions to continue their activities, maintain their interests, and create positive moments despite the challenges associated with ALS.
Learn more about our financial support initiatives, including Youth Support.