Past activities

YCare Day is back for its 2nd edition YCare Day is an initiative is designed for young people from 6 to 18 years old who have a family member with amyotrophic lateral sclerosis (ALS), and aims to support them and equip them to face the challenges of the disease. The event offers hands-on training on ALS […]

This support group facilitated in English is for all caregivers, friends, and families of people living with ALS. The support group for caregivers provides a space to discuss challenges related to the disease: advance care planning, supportive resources, research protocols, mental health, and more. It is a place to share, find support, and inspire hope. […]

The Hobby Club is a virtual place where we can put ALS aside and chat about something completely different – your hobbies! Whether it’s model-making, painting, creating music, bird watching – the list goes on! – come share with us what takes your mind off things, makes you feel more like yourself, or simply brings […]

This support group is for all caregivers, as well as friends and families of those living with ALS. The support group for caregivers offers a place to rest and discuss the challenges specific to caregiving: new roles, managing emotions, adapting to change, exhaustion, sharing responsibilities, and accepting one’s limitations. In a caring environment, participants can […]

This support group is for people living with ALS, as well as their friends, families, and caregivers. The support group for people with ALS and their families is a caring space where they can discuss their experiences. Covering a variety of topics for both the person with ALS and their loved ones, it provides an […]

This support group is for people with ALS.  The support group for people living with ALS provides a space to discuss challenges related to the disease: advance care planning, supportive resources, research protocols, mental health, and more. It is a place to share, find support, and inspire hope. When and where How to participate on […]

This support group is for bereaved people who have lost a loved one who was affected by ALS. The support group for bereaved provides a safe space to talk about the loss of a loved one. It addresses topics related to grief, such as the stages of grief, beliefs, the legacy of values, and finding a […]

ALS affects the entire family, including young people. It is perfectly normal to feel at a loss when it comes to discussing the disease and its impact with them. Activity description During this discussion, Justine McHugh, social worker and clinical director at Deuil-Jeunesse, will present concrete guidelines and practical tools for discussing the disease, emotions, […]