By gradually robbing people of the ability to move, walk and talk, amyotrophic lateral sclerosis (ALS) is a series of losses, one after another. Each day brings a new challenge, a new loss, and a new test of resilience. But stories like that of Judith and her partner Nicolas show how hope, determination, and love can shine even in the toughest circumstances.
Turning loss into action
When Nicolas was diagnosed with amyotrophic lateral sclerosis almost 2 years ago, Judith knew she couldn’t stop the disease—but she could take action in her own way. Determined to support her partner and inspire her children, she and several members of her family decided to form a team to participate in the Bromont Ultra, a relay race in which they had to commit running a grueling 96 kilometres.
For most families navigating ALS, participating in such a physically demanding event might seem impossible. But Judith saw it as an opportunity to reclaim a sense of strength, show support for Nicolas, and demonstrate to their children the power of perseverance—even when the future feels uncertain.
Moving together: a family effort
Thanks to an adapted wheelchair, Nicolas was able to participate in the event and completed two kilometres with the help of his family and friends.
“It was beautiful to watch his brother, his cousin, our daughter, and our nieces and nephews take turns pushing him,” recalls Judith. “And I think it inspired other runners and people cheering on the sidelines too.”
This moment was more than a race—it was a reflection of the support system that families affected by ALS rely on every day. Voices of hope, practical assistance, and compassion help them navigate the daily challenges of the disease.
The support provided by ALS Quebec for families affected by ALS
Judith’s family chose to participate in the Bromont Ultra as a fundraiser for ALS Quebec, an organization that has been a vital source of support throughout their journey.
“The webinars and workshops offered by ALS Quebec gave us solid information, and we also benefited from services that help fight isolation,” says Judith. “Thanks to personalized support from one of their counsellors, I never truly felt alone.”
Through the race, the family raised over $6,500 for ALS Quebec. Now, they’re encouraging others to contribute to the end ALS with a year-end donation.
The importance of research for ALS
Beyond support services, Judith also highlights the critical role of research to end ALS.
“There’s no treatment that truly slows the progression of ALS,” she says. “Research is what will help us eventually understand the mechanisms behind this disease and lead to effective treatments that can truly help people.”
Supporting ALS research ensures that families like Judith and Nicolas have hope—not just for today, but also for a future where ALS can be treated and ultimately cured.
Add your voice of hope
Judith and Nicolas’ journey shows the power of love, determination, and family support in the face of ALS. By participating in the Bromont Ultra, they not only created unforgettable memories together but also inspired hope in others facing this disease.
Until December 31, 2025, the Tenaquip Foundation is matching all donations to ALS Quebec: up to $60,000. Your gift can double its impact and help families like Judith and Nicolas continue moving forward—finding strength in each other, in their communities, and in the hope that ALS research brings.
Donate Now to help families like Judith’s continue moving forward, together!