Workshop – Addressing ALS in the family

ALS affects the entire family, including young people. It is perfectly normal to feel helpless when it comes to discussing the disease and its impact with them.

Workshop description

During this workshop, Justine McHugh, social worker and clinical director at Deuil Jeunesse, will present concrete guidelines and practical tools for discussing the disease, emotions, and difficult questions according to the age of the young people. Isabelle Lessard, former caregiver to her husband, will share her experience with ALS, including supporting their daughters from diagnosis to their father’s death—and beyond. Join us to enrich your approach to these conversations, exchange ideas in a supportive environment, and feel better equipped to handle these delicate conversations.

When and where

  • Date: Tuesday, March 24th, 2026
  • Time: 6:30 p.m. to 8 p.m.
  • Location: This meeting will be held on Zoom


How to participate on Zoom

If you are unfamiliar with Zoom or online communications, please refer to our Zoom user guides. These guides provide step-by-step instructions on how to join a meeting, activate your microphone and camera, and use chat to communicate.

Tips for participating on Zoom

N.B. If you have speech difficulties due to ALS or are simply less comfortable in a group, know that you are welcome to participate via the chat function in Zoom.

Use Wordly for simultaneous translation

We now offer simultaneous translation for our educational webinars through Wordly.

Contact and additional information

If you have any questions, please contact: Kate Busch


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