General contact information



We’re here for you.

Please reach out to a member of our team with questions or comments. For medical support, please contact your family doctor, neurologist or local emergency department.


Claudine Cook

Executive Director


t. 514 725-2653, ext. 101

Valérie Mantes

Executive Assistant

t. 514 725-2653 #106

Karim Rabbouhi

Administrative Coordinator

t. 514 725-2653, ext. 105

Philanthropic and fund development

Mylène Davignon

Philanthropic development Director, Major and planned gifts

t. 514 725-2653, ext. 115

Elsa Girard

Special Projects Coordinator

t. 514 725-2653, ext. 107

Joanie Gaudreault

Fundraising Events Manager

t. 514 725-2653, ext. 110

Communications

Emilie Orlhac

Communications Lead
**On maternity leave, for any media inquiries, please contact media@sla-quebec.ca

t. 514 725-2653

Hudnel Simelus

Communications & Events Agent

t. 514 725-2653, ext. 108

Programs and Services

Veronique Pignatelli

Director of Programs and Support Services

t. 514 725-2653, ext. 104

Leigh Stephens

Educational Services and Resources Manager

t. 514 725-2653, ext. 102

Kate Busch

Programs and Services Coordinator


t. 514 725-2653, ext. 109

Claudia Diaz

Support Counsellor

t. 514 725-2653, ext. 111

Geneviève Gladu

Support Counsellor

t. 514 725-2653, ext. 112

Ady Proper

Support Counsellor

t. 514 725-2653, ext. 114

Yves Lafleur

Support Counsellor (part-time)

t. 514 725-2653, ext. 103



Our volunteer Board members are leaders from the business and health community who provide governance oversight to our organization.

Many have a personal connection to ALS.


Executive Committee

Susan Kennerknecht

Chair
President, Conseil BKK Consulting Inc.

Benoit Guindon

Secretary
Lawyer, Kellner Avocats

Tanya Luttrell

Vice-Chair
Consultant, SISMIK Culture d’impact

Daniel Lussier

Treasurer
General Manager, Groupe Bellus Construction Inc.

André Besner

Vice-Chair
Quality and Continuous improvement, Trans Canada Forest Products

Administrators

Dr. Jean-Pierre Canuel

Retired Physician
Diagnosed with ALS in 2014

Isabel Cyr

Director, Government Relations & Public Affairs
Lithion Recycling Inc. Former caregiver

Vincent Gagné

Director, Government Relations

TELUS

Ann-Marie Léporé

Occupational therapist

Norman Maclsaac

Social Activist and Author
Diagnosed with ALS in 2014

Dr. Richard Robitaille

Full Professor
Department of Neuroscience, Université de Montréal