HELPING CHILDREN COPE WITH ALS
When a family member is diagnosed with amyotrophic lateral sclerosis (ALS), children may have many questions and concerns about the person they know and love. We offer these guidelines as a tool to assist your family when talking or sharing information or personal feelings about ALS. You may also want to share this information with other key figures involved in your children’s lives, such as coaches and teachers.
If you are a young person living with a loved one who has ALS, you can talk with other youths who are going through something similar. Simply go to www.als411.ca, a site made especially for you.
Below are a few resources that can also help you through this journey.
INFORMATION AND SUPPORT BOOKLETS
To help families affected by ALS, the ALS Society of Canada has published four guides destined for parents, children, teens and schools. They provide valuable answers and information to help address the questions and concerns that children and teens may have when facing this disease.
- Helping Children Cope with ALS—a Parental Information Guide
- When Someone Special has ALS—A Booklet for Children
- When Your Parent has ALS—A Booklet for Teens
- Talking With Young People About ALS—For Schools
WEBSITE FOR YOUTHS
La maladie grave d’un proche vécue par les jeunes [French only]