Our Programs and Services for people living with ALS, caregivers and healthcare professionals

The Amyotrophic Lateral Sclerosis Society of Quebec is dedicated to improving the lives of people living with ALS as well as their caregivers. Through our close collaboration with healthcare partners, we are able to offer a variety of programs and services that are complementary to those offered through the healthcare system and by other organizations.

The ALS Society of Quebec understands that the needs of those touched by ALS change over time, which is the reason behind the variety of the services offered. Through documentation, conferences, and our website, people with ALS, caregivers and healthcare professionals can learn about issues related to ALS.

Through one on one or group contact with our psychosocial counselors, members can receive support, starting with an initial call upon becoming a member and continuing  with support groups, follow up phone calls, or phone support as needed (a toll-free support line is available). Through social and networking activities, members can also reduce social isolation which some may feel.

Please note that in order to access to our services, you need to register as a member.

To register

Please select the registration form that corresponds best to your situation:

Orientation and reference

The ALS Society of Quebec offers its members personalized psychosocial support. Our team of four psychosocial counselors are dedicated to helping you and your loved ones during all stages of the disease.


Toll-free line

Contact us at 514 725-2653 (or toll-free in Quebec 1 877 725-7725) to speak to a psychosocial counselor or schedule an appointment. Our team of counselors can answer your questions and concerns, as well as those of your family.


Support groups

We organize monthly social and support activities such as outings, support groups, and conferences. These informal and friendly events are perfect to meet and exchange with people going through a situation similar to yours. Visit our Events Calendar to browse our upcoming events.



In order to reach as many people throughout the province as possible, we offer many phone conferences.

The ALS Society of Quebec offers a short-term last-resort assistance service, that is subject to the availability of funds. Financial aid requests are reserved for financially and socially vulnerable families who demonstrate urgent illness-related needs that cannot be addressed by: existing health and social service networks/programs; regional community organizations/resources; insurance coverage or government programs. These are families who do not have access to the equipment and services needed to care of their illness without negatively impacting upon their basic needs. This Community Support Program includes assistance and guidance in finding resources that can support families with various needs over the course of their journey with ALS.

Please note that all requests for assistance must come from a health professional and that we will not reimburse any purchases, rentals of equipment, or costs/fees related to services that are made prior to a request being sent, received and processed by the ALS Society of Quebec. Please contact us before undertaking any expenses or purchases, or to find out more about the program. We are here to help you.

This support program provides last-resort, short-term assistance. Given that the ALS Society of Quebec is a non-profit community organization, our role is to help with delays and shortcomings within the health care system, not to replace or substitute any government programs. This support program is made possible through donations and grants, and varies according to the funds available.

Download the fillable PDF Request Form here