Helping Children Cope With ALS – A Parental Information Guide

An illness like ALS brings about many changes and affects every member of the family.  Children and teens may have concerns, fears and questions they don’t know how to cope with or articulate. The following resources are designed specially to help children and teens who have a family member living with ALS.  Keeping your child informed and sharing in the family experience is important when a family member is facing an ALS diagnosis. If excluded, children can feel isolated, forgotten and misunderstood—or they might be coming to their own, inaccurate conclusions. This guide will help you talk to your children about ALS.

Helping Children Cope With ALS