“With change comes adjustment and resilience.” – Odette Lacroix

“With change comes adjustment and resilience.” – Odette Lacroix

Back in 2001, when my husband Pierre was diagnosed with ALS, the outlook for people living with the disease was very different. At the time, there was only one support group in the entire province, so we had to travel to Montreal once a month if we wanted to attend. Fortunately, over the years, the programs and services offered by the ALS Society have multiplied and developed, to the point that we can now get personalized support quickly and close to home. That’s how we got through life as a family coping with ALS to the best of our abilities—with the support of the ALS Society of Quebec.

When Pierre passed away, I promised that I would continue to support the families in his honour and his memory, no matter what. Of course, we’ve had our share of upheavals and challenges over the years, and 2020 is no exception. The COVID-19 pandemic has made it impossible to visit families in person, attend support groups, or walk together in solidarity during the Walk to End ALS. But what’s been even harder is not being able to say goodbye to the people whose time has come to leave us. The grief that comes with losing these people too soon is already bad enough, but it’s even more unbearable when you can’t share your pain and sorrow—or your hope for a future without ALS—with family and friends.

With change comes adjustment and resilience

Right off the bat, with help from the ALS Society of Quebec, we had to find new ways of connecting virtually, like Zoom calls, in order to spend time together. At 79, wrapping my brain around these new tools was no walk in the park! It was a challenge adjusting to this new way of communicating, which we’d never used before. With change comes adjustment and resilience, and together we’ve found practical ways to keep our community spirit alive. As proof, one of the last support groups on Zoom was attended by 19 people!

For 2021, I want to wish everyone a year filled with love and compassion. I’m confident that together we’ll be able to keep navigating the many challenges that life throws at us. As for me, I’m going to continue keeping my sacred promise by making sure that families touched by ALS across Quebec get the best possible support, day after day, year after year.

Wishing you all a great Holiday season and a happy New Year!”


Odette Lacroix
Volunteer in Charlesbourg (Quebec) and former caregiver

To make a donation now, please visit our website: https://www.imakeanonlinedonation.org/slaquebec/

With your help, the ALS Society of Quebec can give the gift of support and hope to families touched by ALS.


About the ALS Society of Quebec

Whether it is attentive listening, online resources, virtual support groups and conferences, or a financial boost for the most vulnerable families, the ALS Society of Quebec provides diversified and personalized services to support all families touched by ALS across the province to maintain the best possible quality of life, despite the upheavals that such a diagnosis can cause in their daily lives.

Fanny Demers